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Dad-of-three living with rare condition that causes his bones to ‘die’

A dad-of-three has opened up about living with a debilitating, painful condition which causes his bones to crumble away and “die”.

Jorge Wright, described by his family as a man who would “help anybody with anything”, spent much of his working life digging roads and laying gas pipes.

But that all changed after he started experiencing worsening pain in his groin which was initially thought to be a hernia or arthritis by doctors.

After being sent for MRI scans at Withybush Hospital in Haverfordwest in August 2015 he was discovered to have avascular necrosis (AVN) in both hips at the age of just 34.

The condition leads to the death of bone tissue due to a lack of blood supply and causes bones to break and collapse.

“It’s the same pain as an end-of-life bone cancer sufferer. It’s excruciating,” explained Jorge, now 40.

“I’m on very, very high pain medication and even that doesn’t really stop the pain.”



Jorge with his daughter Milly, eight

In March 2016, at the age of 35, Jorge was given a left total hip replacement followed by a right one six months later.

It gave him a short reprieve from the daily agony of the condition and allowed him to return to work. But in 2017 he started complaining of pain in his back, both his ankles, and his feet.

A further operation followed after clinicians found the back pain to be caused by a protruding disc in his spine which was compressing nerves.

He added: “That was unfortunately nothing to do with this condition but touch wood they haven’t found AVN in my spine yet, even though it can reach there.”

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Despite always being the breadwinner of the family Jorge was forced to give up work after he began to struggle with basic tasks such as walking up stairs.

His bedroom even needed to be moved downstairs to help the dad, who had not yet reached his 40s.

He said: “I can make myself a cup of tea but I have to let my wife carry it because if I drop it I’ll scald myself.

“I am in a wheelchair 99% of the time now although I do try to use my crutches.”


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After a battle to be declared unfit to work, which impacted his mental health, Jorge was given an adapted bungalow in Saundersfoot with his wife Tammy and their children William, 19, Jake, 16 and Milly, eight.

But worse news was to follow when doctors discovered that AVN was also present in both his ankles, feet, wrists and hands.

He now wears supports on his wrists and hands to try and preserve the joints for as long as possible and uses his wheelchair constantly.

He added: “It’s affecting everything with my children. I can’t play football with them or do anything a normal dad would do.

“And it also affects your mood. You just don’t want to be around people.”

A GoFundMe page has now been set up by his twin sister, Hulda Wright, to give Jorge an electric wheelchair which will “significantly” improve his quality of life.

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Any additional money will also go towards adapting the family’s garden. To donate go here.

Hulda said: “This has been a huge uphill battle for Jorge, going from a fully fit 35-year-old to a wheelchair-using 40-year-old who needs help just to get from one room to another.

“He has missed out on school assemblies, sports days, parents evenings, and all the things we take for granted as our children have grown up.

“We all try to keep spirits up but we all know the effect it’s had on him. It would be amazing to see him take his dogs, Betty and Biscuit, and daughter on a walk on his own.”



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